EP 158: The Notebook of Doom
I loved Katy’s description of The Notebook of Doom, even though it is tinged with sadness….
Meet latest guest Katy has created a community called The Uber Barrens ClubKaty is working on a book, which you’ll hear all about to document the struggles we go through during our infertility investigations and is looking for stories. We spoke in detail about Katy’s complicated infertility struggle.
Despite being aware something might be up with her fertility, due to irregular periods and having a fertility MOT at 28 – what happened to next to Katy flummoxed leading fertility experts.
When Katy was diagnosed with PCOS she was told her ovarian reserve was great, so whilst there was an issue it was one that couple potentially be managed. By 33, on a visit to a gynaecologist it Katy then discovered her PCOS had gone as had all her eggs.
Katy was told she was ‘hurtling towards premature ovarian failure’. We talked about how Katy found incredible support in a wide range of online forums, some of which we’ve listed below:
Some non-secret Facebook Groups:
- IVF Support Group
- IVF with PGS/PGD Support Group
- Asherman’s Syndrome Awareness & Support Group
- The Miscarriage Association Support Group
- Recurrent Miscarriage Support Group
There are lots of groups that we’ve not included in here and Katy is happy for you to contact her . For example there are groups for surrogacy, donor conception, male factor, endometriosis, PCOS and these were just some of the ones Katy had found. You can contact Katy on twitter here and Insta here and you can read her fab blogs here
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Patients who need IVF due to being diagnosed with diminished ovarian reserve or premature ovarian insufficiency are being denied access to IVF specifically BECAUSE of the medical issue that’s why they need IVF in the first place!! Madness! #Scream4IVF https://t.co/JfqeIkrfSk
— Uber Barrens Club (@uberbarrensclub) October 29, 2018
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